Patient Registry

• To share information about patients in order to facilitate collaboration for funding, research and publications
• To create systematic phenotyping of GnRH deficient patients

• To receive a copy of the Charter please contact Andrew Dwyer.
• To participate in this registry, please return the signed Charter to Andrew Dwyer.

• Idiopathic hypogonadotropic hypogonadism
• Kallmann syndrome
• Constitutional delay of growth and puberty
• Combined pituitary hormone deficiency

Any investigator in this COST Action (BM1105) can submit de-identified patient data if they have valid patient consent by a document approved at their institution.

• Download THIS password protected file
• Obtain a password to open the form by submitting a request.
• IMPORTANT: Please verify that Javascript is activated for this document before filling it out.
• Complete both pages of the form
• Rename, Save and Print a copy the document BEFORE sending it
• Submit the form by using the CLICK TO SEND button at the end of the form
• The form will be reviewed and you may be contacted to provide clarifications
• Your submission and subsequent inclusion in the database will be confirmed by email

Download the Phenotype form HERE